about
the foundation
our mission
W
orking to
A
dvance
R
are
D
isease
S
upport
in
order to
improve
the
lives
of people
affected
by rare
diseases.
our approach

educate
We aim to increase the awareness, education, and prevention of rare diseases.
support
We aspire to walk alongside families in their rare disease journey by providing resources, guidance, and support.

improve
We strive to improve the clinical, diagnostic, and overall patient experience.
our board of directors
Caroline & Trey Winslett
Cofounders
Caroline and Trey Winslett lost their first born child to Gaucher’s Disease on October 16, 2020. Ward’s legacy, forever sweet if far too brief, endures in the foundation his family has formed. Its name – WARD’S Foundation. Working to Advance Rare Disease Support – speaks of heartbreak. Its mission, inspires hope.
Andrea Harknett
Executive Vice President
William McGuire
Treasurer
Mary Lake Davidson
Secretary
Pontea Dixon
Director
Jonathan Dixon
Director
Nicole Grenier
Director
Mallory Kridler
Director
Amy Moore
Director
Matthew Moore
Director
Amanda Moran Lanier, MD
Director
Lee Pedersen
Director
Shelby Eliasek
Intern
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