about

the foundation

our mission

orking to

dvance

are

isease

upport

order to

improve

the

lives

of people

affected

by rare

diseases.

Individual diseases may be rare, yet in total they are more common than you think.

7,000 rare diseases

It is estimated that there are as many as 7,000 rare diseases worldwide.

Affects 1 in 10 people

Unfortunately, 1 in 10 people in the US are affected by rare disease.

50% are children

Rare diseases affect 25 to 30 million Americans, half of them children.

Shortening their lives

30% of children with a rare disease won't live to see their fifth birthday.

our approach

educate

We aim to increase the awareness, education, and prevention of rare diseases.

support

We aspire to walk alongside families in their rare disease journey by providing resources, guidance, and support.

improve

We strive to improve the clinical, diagnostic, and overall patient experience.

our board of directors

Caroline & Trey Winslett

Cofounders

Caroline and Trey Winslett lost their first born child to Gaucher’s Disease on October 16, 2020. Ward’s legacy, forever sweet if far too brief, endures in the foundation his family has formed. Its name – WARD’S Foundation. Working to Advance Rare Disease Support – speaks of heartbreak. Its mission, inspires hope.

‍

Andrea Harknett

Executive Vice President

William McGuire

Treasurer

Mary Lake Davidson

Secretary

Pontea Dixon

Director

Jonathan Dixon

Director

Nicole Grenier

Director

Mallory Kridler

Director

Amy Moore

Director

Amanda Moran Lanier, MD

Director

Lee Pedersen

Director

Shelby Eliasek

Intern

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